March 20, 2014

A Day of Blessings and Answered Prayers

After an awful lot of hard months full of bad news and unanswered questions we had a day full of good news and blessings yesterday.

Addison had his annual visit with the cardiologist Wednesday. Dr. M said the hole in Addison's heart has closed by 50% since his last echo.  He does not anticipate Addison will ever need any intervention. He will do a repeat echocardiogram next year or annually until it fully closes.  Addison was his usual charming self and kept us all smiling and laughing.
While we were in the waiting room at Children's I got a phone call from Addison's ENT.  There was a scheduling issue with his appointment for his surgery followup and repeat audiology evaluation on Thursday.  The Audiologist was in and said if we didn't mind waiting a few minutes she would do the audiology evaluation so we didn't have to travel back to Children's the next day and then again next week.  We were really grateful for her offer.  Addison has 14 appointments in a four week period with evaluations and therapy.  Anything we can do to have one more day at home is a huge blessing.

Anyway, we had been planning to visit Madison while we were at Children's but she, and apparently most of the hospital, came down with a stomach bug, so we opted to delay our visit.  I text her mom to let her know I was sending a package via Addison's cardiologist and she text back to say she had just gotten word the doctors had agreed to discharge Madison!

Way to go, Madison! This was very unexpected.  She has always required at least a month of recovery time in the hospital post surgery.  This time she even came down with a nasty stomach bug.  Still her doctors determined she was strong enough to go home just one week after her surgery.  Wow!  Keep it up precious girl.  You can read Madison's continuing journey at Her Life Worth Living.  Believe me when I say this cookie is going to make a mark on this world!

So as we were in the waiting room, Addison was getting very sleepy.  He had already missed one nap and it was well into time for his afternoon nap.  I was kind of worried he wouldn't do well on the hearing test because he was so sleepy.  He tends to get less responsive as he gets more tired.  It ended up working well, though.  One of the tests they do he needs to be asleep for and he snoozed right through it.  As a matter of fact, for another of the tests it needs to be very quiet.  Addison was sleeping so soundly that his snoring was interfering with the test.  She was able to get all the data, though.  Dr. J said the tubes are working perfectly.  In fact, Addison passed all hearing tests within normal limits!  We told him we are wise to him now.  We know he is just ignoring us.  Next step is to find out why he is not responding and to get to work on those language skills.  But today we are just rejoicing in the fact that our guy hears when we sing to him, and tell him we love him and read the Word to him.  Yeah, Addison!

As a final note when I logged into my email this morning I got the news Bill 654, the Down Syndrome pro information bill, has passed the Senate.  Next stop is the house.  Keep praying!  God is working in great and marvelous ways!

We are simply so excited to see all God is doing and the many prayers He is answering! What a good and faithful God we serve!  How has God been working in your life lately?


  1. So much good news! We love Dr. M so much, and are looking forward to seeing him in a few months for Mackenzie's heart checkup. I am so pleased to hear about Addison's hearing test, and I am looking forward to hearing more about your therapy plan! Blessings!

  2. I am elated to hear all of Addison's wonderful news! He continues to amaze me each and every day. I am so thrilled to know that he will always be able to hear me tell him how much I love him and how perfect he is! It was a glorious day for all of us.