April 21, 2017

New

The last few months our family has claimed the promise of Psalm 51:12 "Restore unto me the joy of they salvation; uphold me with thy free spirit."

April 20, 2017

Easter Morning 2017



Saturday night I threatened the family to be dressed for church and on the porch at 9:00 sharp for a picture.  With our porch newly finished and the weather forecast perfect I could not wait to get a family photo before we left for church.  And it was a complete bonus that the cherry tree was reflecting in the window.  I hate timer pictures, they are always so hard.

April 14, 2017

Race 4 Respect 2016

Despite my best intentions following the Race 4 Respect 2016 to post photos right away for team members and posterity, I find myself in the now familiar position of trying to unearth and post nearly year old photos in preparation for race 2017 which is a mere six weeks away.  Team 2016 was the largest yet and a fun eclectic mix of business associates, family, friends, prayer partners, young, and ummm more mature runners and non runners alike.  Each one has been part of the team which has held us up through trial and cheered with us through triumph.  Having them with us on the day we celebrate the fighting spirit and victories of Addison and his peers means So.Very. Much. to this family.    

April 7, 2017

April Showers

We have had some serious rainy days lately.  We have definitely enjoyed using the cozy days at home wrapping up our school year.

March 21, 2017

World Down Syndrome Day 2017

 Trisomy 21, or Down Syndrome, occurs when an individual has 3 copies of the 21st chromosome. Therefore on 3/21 we celebrate everything that encompasses for individuals who walk this journey.  I was reflecting about where we have been the last four years and how its changed us and grown us and what its taught us about ourselves, our family and our world.  And I asked myself what does this really mean today?

March 11, 2017

On Therapeutic Riding

In addition to traveling one week out of each month for therapy, managing contractors, reviewing proposals, college students, home school students, music lessons, and real life in there... one more reason I haven't been posting here is that I have recently been asked to write and speak in several different venues about Addison's journey and some of the specialized therapies we have used to help him recover from his seizure disorder and overcome dysphagia. That hasn't left any "free" time for blogging. A few weeks ago I was asked to speak to the Impact Club on behalf of Addison and the therapeutic riding program. I have been wanting to post about this amazing type of therapy for some time and simply had no time to write so I am sharing my talk here today.

In 2013 when Addison was born we learned he had down syndrome. He was three weeks old when we met his physical therapist for the first time. We asked what things we should be thinking about long term to help Addison with his hypotonia. She recommended we put him on the waiting list for the riding program. I asked Trudy what we could gain from riding that Addison couldn't get from his regular physical therapy. I was surprised when she answered, "I don't know." She went on to tell us she didn't understand it but she has kids who can't make any progress with physical therapy but when they get on the horses it is like magic.

February 12, 2017

F.R.I.E.N.D.S. Valentine's Dance 2017

This weekend was our annual F.R.I.E.N.D.S. Valentine's Day Dance.  Our local down syndrome group has been such a source of information and support to us these last three (almost four!) years and we always enjoy the time we can get together and catch up with the other families.  Unfortunately, with so many family and work commitments it is a challenge for us to be involved in many events but we are always blessed when we can slip out and see how the little ones have grown and hear what the older members are up to.  The Valentine's Day Dance is one of our favorites because unlike most of the gatherings which are typically mostly members from our group this is a community wide event.  Last night's celebration even included two baseball teams and part of a local boy scout troop.  Another reason we really enjoy this event is because many of the events are during particularly busy seasons such as Christmas and Thanksgiving or times that are complicated for our family like the annual Buddy Walk which usually takes place during our vacation.  But in February there isn't typically way too many events going on so it is easier to get it in the schedule.  We were very happy to have one of our families who moved away make the trip back for the party and see how well this little one year old is doing and how big he has grown!   

I happen to think Addison looked so very handsome especially when he donned his boutonniere from his sweetheart Madison.   

January 24, 2017

Here and Now

I get periodic emails, voice mails and text messages reminding me I haven't posted since April 2, 2016.  And I think, "Hmmm... blogging.  I remember that.  It was fun."  And that's about as far as it gets because then life smacks me in the face and the moment is gone for another month.  The rare moment I have had to open my computer, seriously twice over the last nine months, I get so overwhelmed at the idea of where to start I get absolutely no where.  The other night I was thinking on this very topic and I thought, "Why not stop trying to figure out how to catch up on all that I've missed and just start with the here and now?  At least that way the world at large will stop thinking I am being held hostage or dead."

The sad fact is the here and now is quite an uninteresting and pathetic sounding post.  We are sick.  We have, in fact, been sick for  more than five weeks.  It started with 10 colds which grew into 7 cases of bronchitis and a ruptured ear drum.  Despite finishing antibiotics and many breathing treatments, there are 7 asthmatics in our home, people are still sick.  We've been to the doctors more times than I can count and threw in a trip to Children's hospital for kicks.  We've run the gamut of flu tests, strep tests and chest x-rays.  And, by the way, since its a brand new year with a brand new deductible the out of pocket expense has been astounding.  My husband seriously flipped out when the pharmacists informed him the cost of inhalers alone was $1200.  Yikes.
Doctor's office selfies